Effective date: 22 June 2026
Last updated: 22 June 2026
Version: 1.1
Important. RareJourney is an information and self-management tool. It is not a medical device. It does not provide medical advice, diagnosis, or treatment. Always consult a qualified healthcare professional for medical decisions.
These Terms of Use (Terms) form a binding agreement between you and RareJourney Pty Ltd ACN 697 146 535 (we, us, our). They govern your use of the RareJourney mobile application and any related services we provide (together, the App).
By creating an account, installing, or using the App, you agree to these Terms. If you do not agree, do not use the App.
RareJourney is a digital companion for people living with rare diseases and their caregivers. It helps you record symptoms, store documents, prepare for clinical appointments, and connect with a community of others living with rare conditions. It uses artificial intelligence to support these activities.
The App is intended for personal informational and self-management use only. It is not a clinical decision support tool, a diagnostic instrument, or a substitute for professional healthcare.
You may use the App if you are:
Some choices within the App are reserved for adults. In particular, contributing a person's information to research where that person is under 18 requires the consent of a parent or guardian, as described in our Privacy Policy.
To use most features, you must create an account. You agree to: provide accurate and current information; keep your login credentials secure and confidential; notify us promptly of any unauthorised access to your account; take responsibility for activity under your account.
If you create or manage a profile for another person, including a child, you confirm that you have legal authority to do so and have obtained any consent required to share their information with us. You are responsible for ensuring information about that person is accurate and used appropriately.
The App is not a medical device and is not regulated as one under the Therapeutic Goods Act 1989 (Cth). It does not provide medical, clinical, diagnostic, or therapeutic advice.
You must not rely on the App for: diagnosing, treating, curing, or preventing any disease or condition; making decisions about medication, dosage, or treatment; emergency or urgent medical needs. In an emergency, call 000 or attend your nearest emergency department.
Always consult a qualified healthcare professional before acting on any information provided through the App, including any output from the AI features.
The App uses artificial intelligence and machine learning, delivered through Microsoft Azure OpenAI Service in a closed environment. AI features generate summaries, insights, and chat responses based on: information you provide, including symptoms, notes, and uploaded documents; published research and clinical reference material we have curated; lived experience content shared by other users where they have consented.
AI responses are informational only. They are not medical advice and do not replace professional care.
AI can produce information that is incomplete, outdated, or incorrect. This is sometimes called hallucination. You must independently verify any AI output before relying on it. We do not warrant that AI responses are accurate, complete, or fit for any particular purpose.
Inputs means anything you submit to the AI features, including text, files, notes, and data. Outputs means content generated by the AI features in response to inputs. You are responsible for ensuring you have the right to submit any inputs. Do not submit information about another person, including a child, without appropriate consent.
Use of AI features is optional. You can use other parts of the App without engaging the AI features. AI features may change, be limited, or be withdrawn as the service evolves.
You own the personal content you submit to the App, including notes, symptom logs, uploaded documents, and community posts. We do not claim ownership of your content.
To operate the App, you grant us a non-exclusive, royalty-free, worldwide, sub-licensable, and transferable licence to host, store, reproduce, copy, run, modify, adapt, translate, and display your content, solely for the purpose of providing, securing, supporting, and improving the App for you.
Separate, explicit consent applies if we use de-identified or aggregated information to improve AI features, or if you opt in to share content with research partners (see our Privacy Policy). This licence ends when you delete your content or close your account, except where we are required by law to retain the content or where the content has already been de-identified or aggregated.
If you post in community spaces, you agree to:
We may moderate, remove, or restrict community content that breaches these standards. We are not obliged to review all content before it is posted.
You can report content or conduct that concerns you by emailing support@therarejourney.com. We will review reports and take action we consider appropriate.
You must not:
Our handling of personal and health information is set out in our Privacy Policy, available at https://www.therarejourney.com/privacy. By using the App, you acknowledge you have read the Privacy Policy.
In short:
Where this clause appears to conflict with the Privacy Policy, the Privacy Policy prevails on privacy matters.
The App relies on third-party providers for hosting, AI processing, analytics, and communications. Current providers include Microsoft Azure (including Azure OpenAI Service) and Supabase (on Amazon Web Services). A current list is available on request.
Your use of any third-party service accessed through the App may be subject to that provider's own terms. We are not responsible for third-party services we do not control.
The App, including its software, design, content, branding, AI models, and configurations, is owned by us or our licensors. We grant you a personal, limited, non-exclusive, non-transferable, revocable licence to use the App for your personal purposes in accordance with these Terms.
You must not copy, modify, distribute, sell, or create derivative works from any part of the App except as permitted by law or these Terms.
The App is currently provided free of charge. We may introduce paid features or subscription services in the future. If we do, we will give you notice and an opportunity to accept or decline the new terms before any charge applies.
We are actively developing the App. We may add, change, suspend, or remove features at any time. We will give you reasonable notice of material changes through the App or by email.
You can stop using the App at any time. You can request deletion of your account and data by emailing support@therarejourney.com.
We may suspend or terminate your access to the App if:
We will give you notice where reasonably possible. Termination does not affect rights and obligations that have already accrued.
To the maximum extent permitted by law, and subject to clause 14: the App is provided on an 'as is' and 'as available' basis; we do not warrant that the App will be uninterrupted, error-free, secure, or fit for any particular purpose; we do not warrant that AI outputs will be accurate, complete, or appropriate for your circumstances; we do not warrant that the App will produce any particular health, clinical, or personal outcome.
Nothing in these Terms excludes, restricts, or modifies any consumer guarantee, right, or remedy under the Australian Consumer Law (Schedule 2 to the Competition and Consumer Act 2010 (Cth)) or any other law that cannot lawfully be excluded.
Where our liability for failure to comply with a consumer guarantee can be limited, our liability is limited, at our option, to: supplying the services again, or paying the reasonable cost of having the services supplied again.
Subject to clause 14, and to the maximum extent permitted by law: we are not liable for any indirect, consequential, incidental, special, or punitive loss or damage; we are not liable for loss of profits, loss of business, loss of data, or loss of goodwill, however arising; we are not liable for any harm, loss, or damage arising from your reliance on AI outputs or any other information provided through the App.
Our total aggregate liability to you in any 12-month period is limited to AUD $100.
You agree to indemnify us against any loss, damage, cost, or expense we suffer arising from: your breach of these Terms; your misuse of the App; content you submit that infringes another person's rights or breaches any law.
This clause does not apply to the extent the loss is caused by our negligence or wrongful act.
These Terms are governed by the laws of New South Wales, Australia. You and we submit to the exclusive jurisdiction of the courts of New South Wales and the federal courts of Australia.
We may update these Terms from time to time. If we make material changes, we will notify you through the App. Continued use of the App after the effective date means you accept the updated Terms. If you do not accept, you can stop using the App and/or request deletion of your data.
19.1 Entire agreement. These Terms, together with the Privacy Policy and any other policies we publish in the App, form the entire agreement between you and us in relation to the App.
19.2 Severability. If any part of these Terms is found to be unenforceable, the rest remains in effect.
19.3 No waiver. Our failure to enforce any provision is not a waiver of that provision.
19.4 Assignment. You may not assign your rights under these Terms. We may assign our rights to a related body corporate or to a third party in connection with a sale or restructure of our business.
19.5 Notices. We may give notices to you through the App, by email to the address on your account, or by other reasonable means. You should give notices to us at the contact details below.
For support, questions, or complaints about the App, contact us at:
We will acknowledge complaints within 5 business days and aim to resolve them within 30 days. If you are not satisfied with our response to a privacy complaint, you can contact the Office of the Australian Information Commissioner at www.oaic.gov.au.