Careers
RareJourney was founded by parents of a child with an ultra-rare condition. We're building a founding team of people who want to change how families living with rare disease are supported, and how their lived experience shapes research.
If one of these roles speaks to you, we'd love to start a conversation.
Founding role
Make sure what families see is clinically sound. Guide how RareJourney handles genetic information, shape our approach to clinical safety, and connect our work with the specialists families rely on.
Start a conversationFounding role
You know the moments families find hardest: the diagnosis, the waiting, the decisions. Help us design support that meets families there, and shape how our AI companion talks about genetics with care and accuracy.
Start a conversationFounding role
For rare conditions, missing data is itself a barrier to treatment. Help turn family-reported experience into research-grade natural history data, and set the methods and standards that researchers and partners can rely on.
Start a conversationFounding role
Build the intelligence behind a companion families trust with their most important information. Retrieval over medical records, published research and community insight, held to the standards health demands.
Start a conversationIf you care about rare disease and think you can help, we'd like to hear from you.