Every Cure Early Access - Exclusive Pilot Cohort
We invite you to join the RareJourney App Pilot community. This private pilot program offers early access to the RareJourney app which makes navigating, understanding and advocating for your rare disease easier.
Join the PilotSee the benefits below
Feel more empowered as you navigate the complexities of rare disease
Track daily symptoms and milestones, prepare for clinical appointments, and make sense of the growing body of medical research, all in one place. Rare Journey brings together peer-reviewed science, community insights, and your lived experience to surface what matters most to you, when you need it.
Track, monitor, manage
Daily updates on medication, symptom tracking, and appointment management is made easy. We'll help you prepare for upcoming appointments so you can walk into appointments feeling prepared and with the right information and questions at the ready.
Search across all your data
Navigate your medical documents and compare against a library of published literature and community insights with AI.
Understand complex literature
RareJourney takes the complexity out of medical literature, providing plain explanations about the things important to you. Care Cards provide summaries of care guidance that are most relevant for you at any time, meaning you can understand your journey.
Share your journey, learn from others
We understand the limitations of published knowledge that comes with rare diseases, and seek to bridge the gap by harnessing the strength of community insights. Share stories, contribute to the community, and log your progress
Ready to join the pilot?
Be part of an exclusive community shaping the future of rare disease care.
Join the Pilot